Wow, I can't believe this. I am so humbled beyond any measure of words. It is kinda surreal and hard to digest but thank you.
Cluster Headache, Suicide Headache,Hortons Nueralgia- Occipital Nerve Stimulation, Deep Brain Stimulation, Busting. Stem Cell Treatment
Friday, December 30, 2016
Tuesday, December 27, 2016
Trippin' With Leigh Documentary on Swearnet.com
This blog today is about the multi-talented actor and singer Leigh MacInnis who also happens to be my friend. He is known for his hilarious portrayal of the character's Don and Donna on Trailer Park Boys seasons 8 to 10.
Saturday, December 24, 2016
Monday, November 21, 2016
Started a new video series. Filming life of "People In Pain"
This is a project I have wanted to start for awhile. I may have been one of the original cluster heads filming myself and posting videos on YouTube and there are many Vloggers out there filming their daily life. But I have not seen videos of people living in pain.
Thursday, October 6, 2016
The cost of being sick
I won't bore or shock you with actual numbers but if you need to know message me. The amount I live on per year is way beyond below poverty level. Fact. This is a fact that almost all Cluster Heads, really anyone who is sick deals with unless you have some sort of great pension plan or long-term disability from the company you worked for. That isn't the case for me. That isn't the case for many.
It's a sad reality that almost every one of us looses our careers, homes, relationships due to hardships brought on by costs attributed to being sick.
It's a sad reality that almost every one of us looses our careers, homes, relationships due to hardships brought on by costs attributed to being sick.
Monday, September 19, 2016
PTSD Post Traumatic Stress Disorder
Imagine being on a roller coaster without a lap bar or shoulder harness, spinning upside down, swirled around in circles like a Gravatron at a fair and the floor drops. You want to pass out. You have no control. You feel frozen in time yet want to die or the ride to stop at any cost. You can not control the ride, your emotions, thoughts, feelings and feel 110% helpless. All that happening while replaying what terrified you in the first place and then it plays over in your head over and over and over. Reliving the event every time.
Saturday, August 20, 2016
GO F*(% Yourself Blog....I take advantage of what you take for granted.
Quite the blunt statement with such profanity.....well there is a reason.
This blog is not written in haste in anyway shape or form but a true reality of survivors lives dealing with the general public.
This blog is not written in haste in anyway shape or form but a true reality of survivors lives dealing with the general public.
Friday, August 12, 2016
Celebrities, average Joes, survivors & supporters on Cluster Headaches.Updated !
I have had some great success with awareness and advocacy in the last 11 years of being sick.
And some might ask why tell a celebrity who isn't sick about a disease they never heard of? Its the same reason I tell average Joe's about Cluster Headaches. Except celebrities have the ability to reach a greater audience than I ever could. And I will explain that a a bit further.
And some might ask why tell a celebrity who isn't sick about a disease they never heard of? Its the same reason I tell average Joe's about Cluster Headaches. Except celebrities have the ability to reach a greater audience than I ever could. And I will explain that a a bit further.
Monday, July 25, 2016
11 years ago today was my 1st Cluster Headache,15,000+ more since then.....
July 25, 2005 was a day Id soon never forget. It was my first attack.
Monday, July 11, 2016
Laying blame or Love Life
Before you read this, look in the mirror.
Many of us in life ask ourselves
Many of us in life ask ourselves
Sunday, June 5, 2016
Coping with Cluster Headaches
Coping with Cluster Headaches.....
If you are reading this, and have cluster headaches. You are coping right now.
If you are reading this, and have cluster headaches. You are coping right now.
Saturday, May 28, 2016
Buster
Buster, re born Nov 18,2012 and passed May 28,2015. 1 Year ago today.
Why are you reading about a dog that died? What is it in relation to cluster headaches?
Grab a tissue box, it will tug your heart strings.
Why are you reading about a dog that died? What is it in relation to cluster headaches?
Grab a tissue box, it will tug your heart strings.
Tuesday, May 17, 2016
Sunday, April 24, 2016
Never miss an opportunity
I don't know if its because I am older and I think ahead or what but I never miss an opportunity to help others if I can.
Tuesday, April 5, 2016
I survived 44 Years.
44 years ago my mother. Mein klein muter (German for my little mom) gave birth to a healthy baby boy
Saturday, March 26, 2016
Bureaucracy of being sick-Strangers and Dr's please read, Listen and Learn from your patients
There is a certain astigmatism within myself in being sick.
Monday, March 14, 2016
CH Readiness KIt
Having a neurological disease is a way of life. Always preparing yourself for home or not home attacks.
Friday, March 4, 2016
Wednesday, February 3, 2016
Dedication to those who help with us.
Those left behind from suicide often leave devastating effects on loved ones. Family members often question why or what they could have done further. Some didn't know. Some didn't see it coming or believe it was that bad.
I have seen what suicide causes.
Tuesday, January 26, 2016
Death, life after.....
This disease is 200x the national suicide rate. I have lost sooooooo many Cluster Heads. And sadly will loose more.
Friday, January 15, 2016
Why me?
Why me? If you have any type of disease, illness, ailment. I can almost bet you have at some point asked yourself, why me?
A question that has been asked since time began....
A question that has been asked since time began....
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