Introduction to a Cluster Headache Survivor

I have a rare neurological disease called "Cluster Headaches" or more commonly known as "Suicide Headaches" for obvious reasons. I am starting this blog to connect, help and provide assistance to others in need to help educate others who know, be related to or possibly work with someone with this condition.

Cluster Headaches affect less than 0.01% of the worlds population. There is Chronic like me and Episodic.I have been chronic for over 7+ years.

The disease is life altering, and been clinically noted as 'The Worlds Most Pain full Disease On the Planet Known to Medical Science" quoted by Dr.Peter Goadsby.

The attacks range from 30 min to 3 hours long every attack. The intensity is different for each attack. I get anywhere from 1 to 15 per day everyday.

I have had 4 brain surgeries thus far.